Document Organization
It may seem that you’re always either asking questions or answering them. Some families find that good document organization systems are a big help in that! When you have a way to track and store information, you can share important details of your child’s care and be more ready to work with those who are helping you. Here are some resources about how to record important information and store paperwork so that you can find it when you need it.
Disclaimer: The information on this page was obtained from third party materials/links for informational purposes only. This information does not constitute legal advice nor does it express or reflect the policies, thoughts or opinions of NICA.
Last updated 10/14/2026
Explore the resources below to learn more about Document Organization
Expand each drop-down below to find the resources. You can learn something even if you just have a little time!
Tell me the basics – Quick overviews you can read in just a few minutes. These highlight the most important ideas so you can get started fast.
Show me more info – A deeper explanation for when you want to build your understanding. These provide examples, context, and additional details.
Give me all the details – Comprehensive resources like full websites, long documents, or webinars. These are best when you want thorough answers and in-depth learning.
Tell me the basics
My Health Passport
This is a document you can fill out about your child to bring to a doctor, therapist, or hospital to help them quickly know important information.
Type: Fillable Form
Source: Florida Center for Inclusive Communities, University of South Florida
Show me more info
Drowning in Paperwork? How to Organize Your Child’s Paperwork with a System that Sticks
This website has tips on organizing the forms, files, reports, receipts, and other documents that are a big part of a NICA family’s life.
Type: Website
Source: Parenting Special Needs Magazine
Good Record Keeping is a Must! Tips on Organizing Your Medical Records
Here’s how to put together a binder to keep records, receipts, and important documents.
Type: Website
Source: Parenting Special Needs Magazine
Give me all the details
CARE Notebook
You can type directly into this PDF to create pages for your own notebook. It lets you keep track of things like provider contact information, tests and procedures, equipment and supplies, and hospital stays. It also has space for descriptions of your child’s routines and needs.
Type: Fillable PDF
Source: Family Voices of Washington